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If you could find out now when and how you were going to die, would you want to know?

After watching clips from the movie 'Still Alice' about a woman diagnosed with early onset Alzheimer's disease, I verified that the disease is genetically passed down. A child born to a parent with EOAD has a 50% chance of inheriting the genes that cause it, and if they do, it's almost 100% certain the child will develop EOAD. EOAD is a rare form of the disease, with symptoms beginning before age 65 and as early as age 30.

In the movie, Alice has three adult children. Two are tested: one positive and one negative. The third child chose not to get tested. She didn't want to know (at least at that point in her life). (Side note: one of the writers and directors of the movie, Richard Glatzer, was diagnosed with ALS before beginning the project of adapting the book to screenplay. He died three weeks after Julianne Moore won an Oscar for her performance as Alice.)

Would you function better knowing what was ahead of you (whether death by illness or injury) and how much time you had left, or would knowing destroy your peace of mind and keep you from enjoying life? If you did learn of your fate years in advance, would you tell anyone?

Part of me would want to know so I could plan ahead and make informed choices (and wear Depends on *the day* to make cleanup easier). However, it's possible the knowledge could put me into a tailspin of fear, causing me to shut down, unless I learned I would die at a healthy old age while sleeping. And then there's the issue that comes with seeing into the future: will you screw up the good stuff in your life while making choices in reaction to knowing your fate?

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by Anonymousreply 16July 5, 2025 3:52 AM

I went to my 40th high school reunion in June and saw a good friend who recognized me instantly. By the end of the evening, she had a confused affect and needed help walking out to her friend’s car to go home. Later, a mutual friend told me she had been diagnosed with early-onset Alzheimer’s. I haven’t stopped thinking about her and how cruel this disease will be and already is for her. Utterly heartbreaking.

To answer your question, I hope I go out laughing or dancing after a long life and without being a burden to anyone else.

by Anonymousreply 1July 4, 2025 10:15 PM

I don't know. Such knowledge is a gamble. You might luck out, you might not, you might be able to come to a sense of peace with it, it might terrorize you until it finally happens, and once you know you know.

My meditation teacher (George Haas) once described a practice where you spent all day envisioning every possible way you might die, as fully as possible. Cancer, car accident, stabbing, Alzheimer's. And on and on and on. He said it became quite frightening. I'll stick to breath counting for now, but I can see the sense of it.

by Anonymousreply 2July 4, 2025 10:34 PM

I'd only want to know if dementia was involved.

by Anonymousreply 3July 4, 2025 10:53 PM

I would roll the dice and say yes, I'd want to know, especially if something as insidious as dementia or ALS was on the horizon.

by Anonymousreply 4July 4, 2025 10:55 PM

I desperately don’t want to know. I would suspend my life while waiting to die.

by Anonymousreply 5July 4, 2025 10:56 PM

If it were a horrific death, life would suck waiting for it.

It is definitely the top mystery of our life. Some things are better left unknown.

by Anonymousreply 6July 4, 2025 11:10 PM

If it was from a drug overdose I'd want to know why and how that could happen. I might come to the conclusion I would be facing something like dementia and took matters in my own hands.

by Anonymousreply 7July 4, 2025 11:22 PM

You question is general, Op, but the. You refer specifically to Alzheimer. Though it surely is a temptation, knowing when you will die would certainly color all the remaining time, whatever that would be. You would be stuck into counting, life would be centered on death instead.

Being ill and with a firm diagnosis, follows the abpve but then you are confronted with the inevitable. Still Alice was a dire, verging on exploitation movie, but unfortunately a reality for some people. I would try to get out sooner rather than later,but who knows.

Lets bitch instead.

by Anonymousreply 8July 4, 2025 11:59 PM

There are some logical problems with this concept if you think about it, but answering just for "fun", I would say no.

by Anonymousreply 9July 5, 2025 12:01 AM

This is sort of a side bar, but in some other cultures, including Japanese culture, doctors never tell their patients they have a terminal illness, nor do they give them a projected lifespan. I do have to say, that when I have met people who told me their doctor gave them 6 months to live, they generally live almost exactly 6 months, so there is the danger of self-fulfilling prophecy at work.

On the other hand, I read that someone diagnosed with a terminal illness immediately changed his life in many positive ways - better diet, more sleep, regular exercise, etc. His rationale was that although he knew he couldn't cure his illness, he wanted to be the healthiest person ever living with that disease.

It is also fascinating to me how much willpower is involved in staying alive. I have known so many people who stayed alive against all odds to make the wedding of a child, or until a long-awaited visit from a loved-one finally took place.. I often think that in the case of a terminal illness, it's the constancy of pain and the knowledge that there is no option for cure or relief that wears down that drive to stay alive.

by Anonymousreply 10July 5, 2025 12:46 AM

My mom has Alzheimer's. Stage seven, she's now in memory care. My dad told me last week he signed her up for hospice. Her decline went fast after a series of falls and TBIs. But back when she was at stage 3 or 4, I remember having a relatively open conversation with her about it, and she was relatively unworried about it, maybe "generally unconcerned about a far off event" is a way to put it. (...so she didn't do a lot of the things which could have slowed down the disease's progress, like stop drinking). I haven't investigated this but I've wondered if this lack of concern is a hallmark of the disease itself. Or if it was just the way my mom, who spent decades in an emotionally abusive relationship with my narcissistic dad, consciously or unconsciously, dealt with it.

by Anonymousreply 11July 5, 2025 1:55 AM

I live every day as if it were my last, so knowing for sure would be superfluous.

by Anonymousreply 12July 5, 2025 2:00 AM

Ah, but you can know when and how you're going to die. It's simple as a DIY -- just buy a handgun.

I personally would love to know the day, so I can get in as much fun as possible before then. Do I want to know how? Not so much.

by Anonymousreply 13July 5, 2025 2:12 AM

r11, how many stages are there?

by Anonymousreply 14July 5, 2025 3:21 AM

R14 - 7 stages:

Stage 1: No impairment

At this stage, the individual will not experience memory problems. None are visible to a health care professional.

Stage 2: Very mild cognitive decline

The individual may begin to have memory lapses. Forgetting people’s names and or where they left their keys will happen more frequently.

Stage 3: Mild cognitive decline

Noticeable changes occur at this stage. The individual may experience problems in memory and concentration. (Some examples include: Inability to recall what they just read , Having trouble planning or organizing, Experiencing challenges in social settings or at work)

Stage 4: Moderate cognitive decline

Forgetfulness of recent events Change in behavior, feeling moody or withdrawn, Inability to manage finances and or pay bills, Reduced memory of personal history

Stage 5: Moderately severe cognitive decline:

Unable to recall their address or phone number, Confused about where they are, such as the time and place, Unable to make decisions. They can still remember important details about themselves and their family and will not need assistance with eating or using the restroom.

Stage 6: Severe cognitive decline

At stage 6, an individual’s memory will continue to worsen. Changes in personality and behavior will also take place. Individuals can’t recall their children, spouse or caregiver’s name. They may also begin to wander, have difficulty sleeping and might experience hallucinations.

Stage 7: Very severe cognitive decline

At the final stage of the disease, the individual will experience a loss of motor skills. They will lose the ability to speak. The brain and body lose their connection. Loved ones and caregivers will need to help the individual with walking, eating and using the restroom.

by Anonymousreply 15July 5, 2025 3:43 AM

thanks r15

by Anonymousreply 16July 5, 2025 3:52 AM
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