Palliative Care

HUh?

They’ll add Ativan to the mix to chill you when you’re anxious. Or Xanax if you need something a little heavier. O2 for comfort. They know what pain meds to give for systemic organ failure. They know how to keep you calm and comfortable.

Keeping good thoughts and gentle hugs for you OP.

OP, you're not clear--are you the one who's so ill or is your husband?

In either case, I send you my best wishes.

I'm sorry your husband has reached the end, OP. I know how you feel.

Best to you OP. Sending comfort.

Palliative care is the best choice for end of life care. They will keep your husband medicated enough to make his last days or months comfortable.

Sorry to hear your husband will need this service. Hugs.

Thanks for the responses and sorry for the confusion.

I'm the one at the end stage of life and am mostly at peace with it, except for the symptoms (pain, fatigue). Am mostly concerned about my husband's emotional state. This news was sudden.

Benzodiazepines (ativan, Xanax) and NSAIDS further damage the liver. Hoping to get more answers in a few weeks.

OP-you mean you were fine and suddenly organ failure blamed on OTC pain meds?

I need to regularly take OTC NSAIDS. I get my kidney/liver tested though not that often.Now I’m a Scared-Susie discovering organs can fail so quickly. Any ‘’ins and outs of NSAID use to share?

Its' called comfort care... quite frankly we should all be so lucky once the new administration takes over...

Best to you and your husband, OP.

Fake sick thread, again you people are stupid, die quickly OP!

By all means get this important info, about the lack of pain meds for your upcoming agonising slow death, on an annonymous forum for bitchy old gays.

It's a living.

My mom had pancreatic cancer and had palliative care at the end of her life.

She was kept comfortable and as pain free as possible. Visiting was unlimited and she was constantly surrounded by family. At least one of us slept by her side every night.

I know she was very happy with the care she received and knowing that made things a lot easier on the family.

My dear sweet OP. Thank you for posting. I am so saddened to hear your news, but I know you’ve lived a good life, accomplished meaningful things and put things in order for your husband and what more can any of us hope for? If you see CackleCackle and Pierre on the other side will you say hello to them.? And will you have your husband or a friend post your obituary? (I thought maybe I could figure out who you were from the Nature article, but failed.)

R12, what leads you to believe OP is defrauding us with a fake sick thread? Evidence? Motive? Witnesses? Please expand.

Did not consider OP could be a scam. Now I don’t know what to say.

OP?

❤️❤️❤️

While we’re pallivativing -whatever happen to that Victoria Jackson? Isn’t she scheduled to be dead by Christmas?

OP are you gone already? Who am going to make Gallo jokes with now?

My grandmother had in-home palliative care the last month of her life after a very swift decline from pancreatic cancer.

As stated above, it was mostly just to keep her comfortable and in less pain for the end. A nurse was assigned to her who moved in and just took care of everything around the house. After my grandmother died, the nurse cleaned everything up, came to her funeral to say goodbye to all of us and then moved on to her next situation.

I'm not a religious person, but I do thing she was sent to us by some higher power. How someone can do that job is beyond me, but thank god there are people who can.

All the best, OP.

[quote] Benzodiazepines (ativan, Xanax) damage the liver

Ativan (lorazepam), Serax (oxazepam), and Restoril (temazepam) are three benzodiazepines that are safe in liver failure.

Fuck Hugs Send Drugs

Can I have your stuff?

So is this guy for real or are we wasting our tears? We’ll never really know.

I wish I could have palliative care.

What do you mean R27-are you I’ll too?

If someone is at the end of their life, why would they care about liver damage?

Bring on the George V cocktail - morphine & cocaine!

r29 It can make other analgesics that are metabolized through the liver less effective, thereby defeating the entire purpose of the pain management care plan.

^ Forgot to sign.

OP, I’m sad you are facing this and I hope that your passing is gentle and pain free.

R26 OP is the retired immunologist who currently lives in the Bay Area who worked for pharma near Boston previously. He survived cancer years ago. I don’t know why he’d have any incentive to be lying about this.

I was just asking.You don’t have to yell at me.

r33, ElderLez, thank you.

BTW, the Nature paper for AD I'm on is for the direct immunization of "Alzheimer's Mice" with B-Amyloid protein, showing a cellular and antibody response with plaque clearing. Subsequent work was directed towards direct injection with pre-made monoclonal antibodies to plaque protein. Didn't work on that project. It's now essentially owned by Lilly and/or Biogen.

While in the hospital recently, was diagnosed with end-stage liver, kidney, and heart failure, and do not qualify for a liver transplant. Couldn't get a follow up appointment with a hepatologist until next month, from whom I will get a referral to Palliative. Have been warned that I have fatty liver (drinking, not a good diet) but then had multiple bouts of c-diff, which I think was the nail in the coffin. A Google life expectancy search after entering various parameters is two years. Am mostly at peace with this; have lived a good life. My worst addiction has been Datalounge.

So sorry R35- there are some here who are wishing you peace. DL is my addiction also- good or bad it’s been an experience.

Cynthia/r34, there was another situation like this from a poster named Joe (authenticated), who likewise chronicled his final days on DL. His threads were full of attacks that he was making it all up. It got really ugly, and people might be reacting to that. ElderLez will remember this. I can't find those threads now.

It turned out that I had personally known Joe as well. I had suspected all along, but figured it out after his death, when DL's Joe and my "Joe" died at the same time. When I tried to give DL closure, I was also attacked as a troll.

In Joe's case, his partner, who had never posted, came back to post once after Joe's death, to tie up loose ends. I am grateful that, for the most part, the OP of this thread escaped that form of evil, and like Tyrone/r36, and ElderLez wish OP peace and an easy transition.

They got lesbians on the DL?

[quote]I can't find those threads now.

I remember those threads, r37.

Here:

The first step is to admit we are powerless over our dl addictions. I don’t think there are any other steps. We just admit we are addicted and keep scrolling.

Thank goodness you are still alive OP. I expect many witty posts in the time you have left, pain and fatigue be damned. (Thanks for the clarification about the article. I think I’ve found you.)

And thanks to you Mao and Stargazer.

R35 (OP): I’m very sorry to hear about your diagnosis/prognosis. R33 (ElderLez): Thanks for figuring out who OP is. I’m the retired Boston-area immunologist. OP, it seems you’ve done a great job of maintaining a good work/play balance in your life, which I think helps when you find out that life may not last as long as you once thought.

A friend of mine had a younger sister who unfortunately developed breast cancer at a young age. The treatments she underwent got it into remission. But when it recurred a few years later, it came back stronger and more disseminated. The prognosis was poor. She and my friend had already planned a much-wanted trip to Europe. Despite the sister’s failing heath, they figured out how to accommodate the sister’s needs for the entire trip and had a wonderful time together. The sister died fairly soon after the trip. My friend is very happy that they took that trip together and has wonderful memories from it.

What I learned from that is that when the time comes, figure out what you and people close to you want to do together, and do it.

Here’s hoping that you end up having more time than expected to do just that!

As opposed to palpable care, which seems an enigma in the US.

Apologies R41, OP’s husband is from Boston and I got that part mixed up. Hope you are well.